IMPACT OF THALASSEMIA MAJOR ON PATIENTS’ FAMILIES IN PAKISTAN

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dc.contributor.authorKAMRAN ISHFAQ (PhD Scholar)
dc.contributor.authorSUPERVISOR PROF. DR. JOHAR ALI
dc.date.accessioned2026-08-31T06:59:40Z
dc.date.available2026-08-31T06:59:40Z
dc.date.issued2009
dc.description.abstractThe objectives of this study were to determine the impact of Thalassemia major on patients’ families in Pakistan; to describe the awareness among the parents regarding Thalassemia Major; the cost of treatment of Thalassemia Major and the sufferings it brings to the families; the social problems faced by patients’ families; to identify the barriers patients’ families face in the treatment of Thalassemia child. Population of the study was parents of Thalassemia major children, visited for blood transfusions at the Thalassemia / Hemophilia Centers of The Children’s Hospital & the Institute of Child Health Multan, Minhaj ul Quran, Amina Blood Foundation, Fatimid Blood Foundation Multan. A sample of 500 respondents was drawn from the total population and structured interview was administrated. Data were analyzed and interpreted by using SPSS (Statistical Package for Social Sciences) 19.0 version software. A structured interview was conducted for data collection. Interview schedule was developed after detailed literature review and also accessing the situation of peripheries in district Multan. The structured interview was discussed with two experts of sociology and two senior doctors (>8 years’ experience) working in the Thalassemia centers, Government Health Institutions. It was revised to incorporate recommended improvements. Focus Groups Discussion was also conducted. A total of (N=64) sample was drawn from the population and participants were divided equally (n=16) from 04 blood transfusions centers. Descriptive and inferential statistics were applied to analyze the data that includes: frequency, percent, mean, standard deviations. one way ANOVA and Pearsoncorrelation while for the data analysis of FGDs NVivo 7 software was used. The study summarized that the health care providers should be encouraged to talk about Thalassemia as a public health problem in Pakistan and should enhance the public awarenessto eliminate the Thalassemia in Pakistan.
dc.identifier.urihttp://repository.uop.edu.pk/123456789/494
dc.language.isoen
dc.publisherDepartment Of Sociology, University Of Peshawar
dc.relation.ispartofseriesth12553
dc.titleIMPACT OF THALASSEMIA MAJOR ON PATIENTS’ FAMILIES IN PAKISTAN
dc.typeThesis
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